Ice Cream! 0comments
thread starter published in 2010-02-06 12:34:00
quote 1 floor
I decided to cave and abandonon insulin. I was so wretched not eating anything that I just had to suck it up and executethe stupid insulin shots. Part of the reason I didn't want to do insulin is ...
I decided to cave and abandonon insulin. I was so wretched not eating anything that I just had to suck it up and executethe stupid insulin shots. Part of the reason I didn't want to do insulin is that in the past I've had to give myself shots at residenceof these drugs called Neupogen and Epogen which are growth factors for that special type of white blood cell called the neutrophil and red blood cells respectively. You have to employa large honking needle for those things. Well there are bigger needles but those needles are beautifulbig they damageand the injection itself stings. The insulin needle is this teeny tiny smallchild thing that you can barely feel going in so the injection itself is truly not a big deal and I feel kind of silly for resisting and being miserable for a week longer than I needed to be. The improvement in my mood and outlook from being able to EAT again was immediate and I have been treating myself to some sweets - in moderation of course. You can look my assortment of ice cream goodies - moose tracks and bumpy cake flavored ice cream with Sander's hot fudge. Is there anything better? My mood was also lifted by having a excellentvisit with my doctor on Tuesday who thinks I'm doing "awesome."
Remember how I got the mylotarg last week? Mylotarg causes your blood counts to drop. I haven't been sharing my blood counts because they've been totally normal since my transplant which is scarcemaximumpeople have low counts for months behind transplant. On Tuesday they were lower but still okay. Then I went in on Friday for a blood draw and my neutrophils the first line defenders against infection were 0 and my overall white count was 0.5. These are transplant-level numbers - very very low and putting me at a enormousrisk for infection. So what did my doctor prescribe for me? Neupogen shots to raise my neutrophil count!!!!!
Here are the insulin and neupogen needles side by side. Notice the disagreementin the length and thickness of the needles:
Now I'm giving myself 2-5 injections a day total. Great.
I understand this is just temporary but I've been feeding myself that line for the past five and a half years now. Chemo is only temporary. Being bald is only temporary. Vomiting five times a day is only temporary. Feeling love crap is only temporary. Self-injections are only temporary. Being exhausted all the time is only temporary. Taking a gazillion medications a day is only temporary. Taking steroids is only temporary. 'Roid rage is only temporary. Feeling insane from steroids is only temporary. Not being able to snoozebecause of steroids is only temporary. Losing my
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